What is PPIE in Research? | Patient and Public Involvement and Engagement
Patient and Public Involvement (PPI) in research refers to an active partnership between patients, the public, and researchers. It involves people with lived experiences working alongside researchers to influence research topics and methods. PPI is distinct from mere participation, as it emphasises research being conducted "with" or "by" the public rather than "to," "about," or "for" them. The NIHR uses the broader term "public partnerships" to encompass involvement, engagement, and participation in research.
This video outlines the various ways patients and the public can be involved in different stages of the research process, from identifying research topics to implementing results. It covers their roles in setting research agendas, designing studies, participating in data collection and analysis, disseminating findings, and implementing research outcomes. Meaningful patient and public involvement throughout the research lifecycle ensures their perspectives are valued and integrated at every stage.
